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- Traveling with IMHA
Hi Everyone! I’m new here. Our seven year old Briard bitch was diagnosed with IMHA six and one half weeks ago.
She was hospitalized for a few days, had two blood transfusions and is holding her own now with a hematocrit of 40.
She’s on prednisone, azathioprine, cyclosporine and aspirin. We’re beginning to taper her off the prednisone because it’s really giving her bad side effects.
I’m hoping for the best that she’ll fully recover and then thinking ahead to future out-of-state camping trips and family visits and bringing our dog with us.
Do owners whose dogs have “recovered” (I put quotes around the word recovered because aren’t IMHA dogs always vulnerable to have a relapse?) keep these immune suppressant drugs on hand and carry them along on trips just in case?
I have visions of being hundreds of miles from home and our dog feeling sick again.
Do I keep her meds with me even though she’s not currently taking them? Do you simply carry prescriptions along so the drugs can be refilled on the road? What if there’s not a vet to be found? Do I start giving our dog the meds and see a vet as soon as possible?
Sorry this is so long.
Pam & Ella the Briard
Hi Pam & Ella
Congratulations Ella on your recovery. A hematocrit of 40 is very clever of you. I’m sure mum, Pam, had a bit to do with it.
My boy Bingo was diagnosed in November 2011 and he has needed to stay on low dose pred, but I think the majority of dogs (and cats) will be able to come off all drugs totally.
The possibility of relapse unfortunately seems to stay in all our minds. The safest way to avoid a relapse is not to rush the tapering. The usual recommendation around here is no more than 25% -33% at a time no more than 2-3 weeks apart with PCV checks done before and after. There are times when the reduction must be done more aggressively because of the severity of the side effects but it’s not ideal.
My opinion? I guess if in the future you’re planning to go away or camping, I’d go over it with the vet. Ask whether it is best to keep enough drugs on hand in case, or check to see where prescriptions can be filled if necessary, or check out where the different vets are around. It’s probably something I would do, but I’m now your ultra paranoid dog owner. It’s more than likely not going to be necessary. I doubt you would be suprised by the symptoms of a relapse. First time around, I’m sure none of us really knew what was happening. Who knew we could check their gums or eyes for colour. Yet it’s something I do regularly now. If Bingo seems particularly quiet or odd, I check his gums and temperature (sorry Bingo).
Check before going whether the area is a trick prone area. That’s one of the triggers.
I’m sure once Ella is off her drugs (or right down on them), she’d love to have a holiday.
Again, congratulations to you both.
My best,
Vally & Bingo.
Hi Pam.
I love Briards, a working dog. I am very sorry to hear that Ella developed IMHA and I do hope that she will go back to living a relatively active life of a large breed dog.
Can you tell me a little about what the vet believes may have been the trigger for this? That would be a very important consideration in answering your question. If it was something identifiable and treatable that would make some difference.
While a PCV HCT of 40% is excellent, for most dogs this is still not considered a normal average (45% is a standard value used for most breeds, but not all.) For most of us, we have no idea what their average value was when they were healthy because we never thought to do a CBC then. For Chance, I would have given anything to have had the forethought to have done a CBC when he was younger and healthier. So can we rightfully say that Ella completely recovered?
I’ve been studying canine hematological diseases and helping owners since 2007. I can say with some certainty, and that includes my own experience with Chance, many owners often get a Second Chance for their dog, but the dog we went into this is not exactly the same dog we come out with.
A dog that survives is often challenged by the treatments they had to undergo. Prednisone, for instance, is very hard on many body functions and organs. The musculotendinous system can be hard hit. So, for instance, the profound muscle loss during treatment can lead to future joint issues. Chance developed a ruptured cruciate and had to have knee surgery. Can I attribute that directly to prednisone? In his case, yes I can.
I often tell owners that these dogs are our special babies. They’ve had some kind of issue with the environment around them and the outcome was a serious condition. They may never be completely normal and may again react the same way to those triggers. We cannot say for certain exactly what will happen.
For instance most dogs should not get routine vaccinations ever again. Perhaps they cannot tolerate either topical or ingested tick and flea protections. They may have had severe allergies before their IMHA and once off prednisone, the allergies return with a vengeance leaving them with a highly reactive immune system. Allergic reactions like this continue to remain a trigger to IMHA. Some dogs that had thrombocytopenia, once recovered, can have sudden and severe relapses.
I decided after Chance recovered not to challenge him again too much. I stopped taking him to the nursing home, he was a registered therapy dog, but I was concerned about him contracting MRSA.
I paid a great deal of attention to routine health visits and I was careful to keep him from contact with other dogs who might carry something like a routine case of kennel cough.
That care extended to Cassie too, I didn’t want her to be the conduit for something to enter our home.
I agonized over his required rabies vaccination the following year and studied this topic considerably before finally deciding it was the right thing to do for legal reasons. In the end he had no negative reactions.
Would I have taken Chance on extended camping trips that took us a distance from civilization? Absolutely not. Did I take him to our summer home in the Adirondacks? Yes, he stayed in our home and we only took short slow hikes on small mountains. I knew where every emergency vet clinic was all along our trip and I had a relationship with a vet clinic near our home. The good experience was there without all the risks. Our lives changed in response to his needs. Did I ever feel deprived? No. He always enriched my life and made it better no matter where we were. And today, this website continues to honor his incredibly strong will to live by helping other owners.
So, if this were my dog, I wouldn’t continue with the grand plans but scale them back to smaller outings closer to home and for shorter periods of time. A dog will enjoy wherever you end up because they will be with YOU and that, in their world, is all that is important.
my best
patrice
Thank you for such wonderful responses, Vally and Patrice!
Ella is far from recovered. She is still on many medications and is very weak from the prednisone. Despite the prednisone ravenous appetite, Ella has lost weight and has muscle wasting.
I’ve wondered if she’ll ever return to being her normal self.
I’m just doing some daydreaming by thinking ahead of camping trips and out-of-state visits. We don’t have trips planned, I’m just wondering if it’s too risky to take her on trips just for fun. It sounds like if I plan ahead and discuss things with our vet it should be do-able.
Ella’s IMHA is idiopathic with no known trigger. Her spleen is enlarged so she had an ultrasound done. The enlarged spleen is a reaction to the anemia. No tumors were discovered in her other organs during the ultrasound.
We’ve been told no more vaccinations for Ella and to keep her out of dog parks and away from dog shows.
I thank my lucky stars every day that Ella’s still alive. I was especially worried for the first two weeks after diagnosis. I was SO worried she’d throw a blood clot to her lungs and die!
Is there EVER a time when a dog who has dealt with IMHA can be declared safe? I know there might be relapses of the anemia but I’m talking about is there be a time when dogs are out of the woods as far as dying from IMHA?
Pam & Ella
Hello Pam & Ella
So good to hear Ella is making wonderful progress. I always say my dog Worzel is “in remission” rather than “cured”. We often say on here that we are all in the crazy, paranoid world of IMHA! I do not let any other dogs in my garden or house now, we give him no vaccinations whatsoever & I am vigilant with Frontline Combo flea & tick treatment. We were fortunate to know that an infection caused Worzel’s bone marrow failure, but I am always aware that a relapse is possible. We are “stay at homes” now and I am happy doing that to protect my dear baby from harm. Like you, I also count my lucky stars every day that we still have Worzel with us. So I would not be taking Ella on any trips other than local ones if I were you. These drugs make them too prone to catching anything & everything going!
I know how worrying the risk of clotting is for you with Ella – it is always important to give anti-clotting meds & I see you are really on top of that, which is great. Take the pred reduction nice & slowly to avoid relapse risks – have a look at this:
https://www.secondchanceaihadogs.com/AIHA_Terms/prednisone-dose-reduction/
I really hope you too will soon be able to say Ella is in remission – I know you will be giving her the best possible care – your deep love for her shines through your messages. Do not fear a relapse – BUT do everything you possible can to avoid it during the drug reductions as it makes the treatment longer than necessary. Then keep a close eye out for anything suspicious – this is how I spend my life with Worzel! If in doubt, we go straight to the local vets.
Please let us know how Ella is doing – any worries or questions, you know you are always welcome to ask whatever you want.
Best wishes
Sheena, Worzel (in “remission”, diagnosed Dec 2012) & his best friend Ollie x
Hello Pam and precious Ella. I am so sorry you are here, but SO glad you found this site. We have all been right where you are (Sadie’s Story) and we know how scared and confusing it all is – I was totally a dear in the headlights.
It sounds as though your vets have a good grip on this horrid disease AND that the communication is good – that’s key. We too, have been lucky enough to have a (well, several now) wonderful vet(s). And, as Ella, Sadie responded quite quickly to the regiment. BUT, she was weaned too fast, and lead to relapse. She again relapsed in October 2014. But she’s a fighter and doing well now, thank goodness.
You mentioned traveling with Ella. It’s a slippery slope and I totally agree with Patrice and Sheena – home is the best place. On occasion, I do take Sadie with me. Her last relapse was when I was staying with my grand children in GA (we live in FL). I had to take her to two vets there (knew one, not the other) and we immediately put her back on prednisone (alone) and that actually did the trick in just a few days. We now, again, are weaning very slowly from that relapse. Geeze.
I tell you this because, I so wish I would have take EXTRA medication (higher dose) for the “what if’s” and will for now on ALWAYS carry the 20mg prednisone with me when I travel with her, which now is not often. She was actually still weaning from the last relapse and was on a VERY low dose (2.5mg am only) of prednisone.
Also, I THINK, not sure, but I think she may have had fleas on her (she’s on no flea/tick medications now). It’s hard to check her because she’s jet black. My son has a huge back yard that Sadie loves to run in – AND roll in. Let’s see, GA. Yep. Fleas. So, perhaps that could have caused the anemia and hence, the relapse. And this year in FL has been equally as bad.
I am now trying to figure out just WHAT the heck we can use to keep the fleas off. I now use a flea comb (thank you Vally!), Food Grade Diatomaceous Earth and a product called Richard’s Organics Flea and Tick (it does NOT kill them, just stuns them and they fall off). I then put them in water and they drown, down the toilet. I put the Food Grade (ONLY) Diatomaceous Earth in her bed, in the area rugs where she lies and under our (high bed, it’s her domain under there – a huge tent) poster bed (high off the ground). Anywhere she lies. It’s a bit unsightly, but I think it’s really helping. I just bathed her and there was one flea (huge, but only one) – he’s toast now. So, it’s much better than the 30 I had found just a month ago.
Also, I wanted to say, it took me a while to realize I can not take her everywhere with me anymore. Yes, broke my heart – I travel much. I still take her to my son’s and my daughter’s home (both in GA), because she absolutely loves the grandchildren AND my daughter has Sadie’s sister, Sophie-dog, and they adore each other. My son has no animals, other than the wild children. :)
When I leave Sadie (as everyone else, no more dog parks, no kennels, etc.), she now stays with her ‘greyhound buddies’ down the street. The greyhounds’ (five of them) fur parents are the best and they know Sadie’s vet (he care for the greys, as they are part of a large greyhound rescue group here in Tampa). Sadie thinks she’s a greyhound (please don’t tell her otherwise….). They are hysterical together. I pay them, as I would a kennel, as a donation to the greyhound rescue – a tax write-off. It’s a win-win situation. Perhaps, you could find someone that would be willing to do something like this or even a barter system – you trade off. I have another friend that I do that with (Sadie, like me, loves all pups), another cocker spaniel, Buster – great buddies.
I am so glad that Ella is doing well. You are so right, the prednisone has horrible side affects. The muscle atrophy is really cruel. BUT, Ella’s muscle tone will come back. You will be amazed, as Vally, Patrice and Sheena have said.
Hang in there – you are doing a remarkable job, both of you!!! I know this brings about some lousy life changes, but Ella IS a survivor and your care and diligence is the reason why. I like the word “remission” (thanks Sheena!) – keep it up Ella!
Sending our love, Linda and Sadie
Hi Pam and Ella
I’m sorry to hear that you are going through this very difficult time, though it sounds as though Ella is doing really well and making great progress. I’m sorry to hear she is having a rough time on the prednisolone, and I hope that she will respond well to the tapering.
As a cat owner, I’m not very knowledgeable about travelling with animals (although my cat Mable has now been to Cambridge and Oxford so she thinks she is very clever) but I think the others have given sensible advice. It’s a tough call for sure, but it looks like there are options in terms of staying closer to home, finding somewhere suitable for Ella to stay, or making sure you are able to research nearby vets etc.
Please give Ella some get well cuddles from us. I’m so pleased to hear she is going in the right direction
Mary and Mable x
Hi, my name is Linda and my dog Pip was diagnosed last week with IMHA, do we are in the beginning of her treatment. To say it has been scary and overwhelming is an understatement!!! However I am reading as much as I can, as fast as Zoe can to learn about this disease. There is a lot of info out there and a lot of conflicting info. Re: having to keep your dog in your home and property for the rest of her life d/t not having an immune system.
My husband is just bereft about not taking our one dog, Ry for a walk in the morning to get us coffee and bagels. We were told that our other dogs would have to stay at home and only on our property as well. This was because they could potentially bring home something that could be passed to Pip because of having no immune system and she could relapse.
So, my question is, is this true? Or is it just in the beginning phase of treatment? Thankful for any info/opinion. 🙏🏻