New Thread for Megan & Sophie

[Vally]

Megan, my vet told me that an enlarged liver is part and parcel of being on higher dose prednisone.  The liver will repair itself from the damage once the prednisone can be reduced.

Bingo’s vet said while he could feel his liver was enlarged, (and I could feel it too) this was not a huge concern.  It was only after bloods showed an large jump in his liver enzymes which indicated that the liver was struggling, that he put him on SAMe and that worked very well in bringing the numbers down much closer to normal again.

Megan, if the option they are giving you is to put Sophie to sleep, then they’ve given up on her. I think you are so right to keep fighting for her.  I would still be very seriously inclined to take her somewhere else.  I know that’s not what you want to hear, but I would love you to have a vet that you have full confidence in.

My best regards

Vallly

 

 

 

[joe]

Hang in there.  There will be ups and downs until you can get it managed.  Dunes never had complete remission but had 5 good years with no problems.

15 for an HCT is manageable.  Dr. Dodds told me to do a transfusion if it dips below that.  Therefore, I would do at least one to two PCVs a week, just to monitor.  Patrice is so knowledgeable.  She gives great advice.

 

The rest of us are pretty good too.  Hang in there, we all know what this is like because we have all been there.  We do care!

 

Joe

[Linda]

Hi Megan.  I’m SO glad you’re posting here (we’ve been texting and a few phone calls haven’t we…), because these are the people that know.

So glad you’re hanging in with Sophie – I was so afraid last night for you both.  It’s one thing when they’re in pain and so uncomfortable that it’s just cruel to keep them going, but that’s not the case – especially now.  I’m glad she’s at home with you and you found a way around the expenses of oxygen at the vet, now doing it at home.  Wonderful.  And she’s on antibiotics right? Do you know which one?

I know I bug you with my texts, but when you respond, your update is shared – we all care so much about you and your little Sophie.

And as Patrice said – you paid for all the tests they’re running, lab, x-ray, etc.,they’re yours anyway – just ask them to print them out and you’ll pick them up!  When you have time, post them here.

I hope you got a few winks – you have been through so much emotional turmoil and know you’re exhausted.  Take care of yourself – it’s hard to do when you’re going though all this.

Keep us all posted.  Huge hugs and lots of love,

Linda and Sadie

[admin]

Hi Megan

Hope Sophie is doing OK at home with you – let us know how it’s going

Sheena

[lynn]

megan,

dr.dodds is the best as all here have said. all advice with great knowledge given by all…with such care these are the best of best folks in the whole world. my very best wishes for your little girl sophie and you.i am so very sorry that you and sophie have to face this awful disease you are in my thoughts and everyone here. my very best lynn & hayley

[Megan]

Hopefully everyone will see this post.  I’m Megan’s mom and she isn’t able to post this right now.  Just wanted to let everyone know how much your encouragement meant to Megan for the last few months.  Our precious little Sophie woke Megan and her husband up Thursday morning howling and then just died a few minutes later.  We are pretty sure it was a blood clot and we are so distraught that we put her through so much.  Her levels stayed the same on Wednesday for the first time and we were so encouraged so this was a big shock when she couldnt breath over the weekend and ended up spending the weekend in the emergency clinic.  They had Sophie there Saturday night and did test and determined she either had pneumonia or a blood clot but didn’t start treating her for a blood clot until Sunday around 5 pm.  Megan has asked her specialist on several occasions about putting her on blood thinners and she said it wasn’t necessary so we are very angry that it came down to this.  Our whole family is grieving – never thought we could hurt so bad and cry so much.  All Megan wanted for her 30th birthday on 12/18th was for Sophie to be well.  Thanks again for all of the moral support through this terrible ordeal.  She was like Megan’s baby and I don’t know how she will be able to get over this.

[admin]

Dear Megan & Megan’s Mum

We all understand what a terrible time this has been for you & I can’t tell you how sorry I am about dear Sophie.  AIHA is rare – bone marrow problems are incredibly rare – & sometimes difficult to treat.  Anyone in Megan’s position would understandably go through the torment & agony of wondering what they could have done differently, blaming themselves. This is in NO WAY Megan’s fault – she has been the best Mum in the world & never gave up on trying to get Sophie the best possible treatment.

I am so sad to hear about what has happened & am sending you all my deepest condolences from the bottom of my heart.  I know how much she loved that little girl.

Sheena

[admin]

Dear Megan and family,
please don’t blame yourself for anything you did or did not do. You had to give Sophie the chance to recover and at the beginning of this ordeal nobody can say if this is possible or not. You did everything possible and even if it was hard on Sophie sometimes, she knew that you did it out of love for her, that you had hopes for her to recover. I wish I could give you all a hug. Please accept my deepest condolences,
Brigitte