- Second Chance AIHA ›
- Forums ›
- AIHA Dog ›
- IMHA grief and how far do I go
My dear little staff cross is just Turned 5
Out of nowhere one day running and jumping next day lethargic and weak
Went to vet told she had IMHA and 11 pvc took her home to die 4 days later decided to do a transfusion
She did well PVc 32 a week later 34 then 30 Then 28 a week later 26 and 2 weeks later now 20
She’s on steroids prednisone plavix and the immune suppressor
We go in 2 weeks if she lasts I suspect it’ll drop once we get to 12 do I try one more transfusion and spleen removalis she in pain
This is brutal I hate it worst experience ever worse than cancer or something more predictable
I want hood but it’s fading and I’m
Crying a lot fearing I might need to
Make the worse decision and then feel maybe I should try more
But when is enough enough I’m desperate for support others experiences
I’m
Alone it’s covid I can’t hug anyone this grief will be awful even euthanising her would be so awful with masks and taking her home and ya I got to dig a hole myself I can’t I’m disabled
What can I do I’m devastated we are inseparable I’m 60 I’ve had dogs I’ve loved my whole life but this is just brutal I’m
In despair
Hi Samia,
I’m so sorry you’re going through this. It’s a terrible disease and it has changed me in a lot of ways.
Is your girl eating and drinking?
Can you tell me what drugs she’s on. Prednisone, Plavix and what else? What is the immune suppressor that she’s taking? Prednisone works as an immune suppressor, but is she taking something else? Can you also tell me what does your girl weigh and the doses of the medication too.
Has she had her spleen removed? If not please DON’T go ahead with it. It’s major surgery and often only used as a very last resort. There are other drugs that might work better.
If her blood drops, and you can do another transfusion, that may give us some time to work out her drugs. Please don’t do the spleen removal. If they do another transfusion, ask them not to transfuse to more than 25. If they transfuse more, sometimes the body doesn’t work as hard to make red blood cells.
Do you have a copy of any of the blood tests? Patrice, who owns the site, is very clever at understanding them, and she can help to guide you.
I know you’re feeling a mess right now, but try and stay positive. It will help your girl. She is not in pain right now, she is just very tired, because with the lack of red blood cells, she’s not getting a lot of oxygen throughout her body. Keep her quiet for now.
Ask anything. You’re alone physically right now, but we’re here to help. We’ve lived this horrible disease ourselves, so we know what you’re going through.
In in Australia, so maybe a different time zone, but I’ll keep an eye on the site, and Patrice may be about too.
Big hugs.
Vally
Hi thanks fir such a fast reply
She’s on
Imuran. Prednisone plavix
I’ll look up dose
It was 1 prednisone
Half plavix
Half imuran half morning half night
We raised prednisone yesterday to 1 and half
She’s about 9 kg she went to 7 when bloods were 11
Lost a kilo is last 2 weeks
Def very tired today
I’ll look up dose
Ok I wondered about spleen she said the surgery is ok but not great and last resort
I am thinking if she gets to 12 one more transfusion as 1-3 is average and she did bounce back
She had a very very bad case and on the slide she could even see the blood coagulanting so we are amazed she recovered at all
She is very healthy happy otherwise before this
Yes the grief is unbearable I need people who
Understand
She is eating and drinking still she when first I’ll and vet said 2-4 days I kept her alive with syringe of water mixed with recovery food even home made bone broth and chicken broth
She won’t eat fresh red meat only dry food but lately ate a bit of canned gravy food
She is gorgeous and pulled up so well at first
I tried the grief link it dropped out and I tried to post a picture she’s truly special
It’s midnight I prob won’t sleep 💤 till early morning she’s cuddling she sleeps with me close under covers never let that before she is always with me 24/7 and cry’s if I leave with covid she is all I have and I know she wants to stay with me … she looked so afraid when she was so sick I literally held her for 4 days straight and keep trying to keep her fluids up and couldn’t sleep as I was afraid she’d die next ti me I’d be asleep and she’d be dead
I know I can’t do it again as idealistic as it was she knew and I don’t want to see her fear and for me to suffer either
I tell her all the time I love her and try be cheery and roll get ball gently cause she is addicted – but just gentle little rolls she rolls it back worh her nose
She looks at me directly and holds my gaze which is rare and does it more and more
I think she knows she’s getting sick again
I’ll try get the blood tests and the dose might be hard to get the bloods tests reports till I go back
And when if we even last till then I Suspect the it could be transfusion decision time or close and of course she could go Down quicker
With the extra prednisone she might pick up
And so I know it’s not over yet
Have u heard of plasma treatment ? And the role of asprin ? I read about that today
I do know the vet said she has never seen a dog that was so I’ll survive this long and they love her and will do all they can
She even rang me today as she had gone to work early to research it more and get a second opinion so I know she’s very honest – but only I can decide and I do know to some extent Zoë will lete know
I know she doesn’t want to leave me as much as I don’t want her to go
Honestly I have loved every dog every time I’ve been heartbroken
But they were old and really ready to go
I know you’ll understand how different this Illness is
I know my friends have no idea
I know only those who have had digs with this really horrible illness could know
Grief is one thing but knowing what’s best is hardest
I’m
Glad she’s got no pain that’s good
I know it’s going to break me but grief does no way round
The thought truly of this st this time of covid is devastating
Maybe a bit like a human going to not be with her though the vet said she’d make an exception and let me hold her with a mask on etc
But just the whole coming home alone with her abd no one to come be with me
Is do lonely and cruel
I haven’t given up not yet but I got hopeful I dared to start thinking she was going to make it so it’s very disappointing to hear she’s dropped back so much
Thanks so much if u don’t mind I’ll stay in touch
Samia abd Zoë
Samia, I’m in Sydney and no I don’t mind at all if you keep in touch.
If you can tell me the dosage of the tablets, that’s important to make sure she’s on the right dose. For a 9kg dog, she should be on about 10mg of prednisone twice a day, so a total of 20mg a day.
Imuran is also called Azathioprine and she shoudl be on 10mg twice a day, so a total of 20mg a day. This can sometimes stop the marrow working though, so if she’s not really responding, it might be good to switch to another drug.
A good drug is Cyclosporine as it works directly to stop the cells doing the damage. It’s a bit more expensive, but if you can afford it, it’s a really good drug for this disease. Some dogs have a bit of tummy trouble with it to start with, but they usually adapt to it. Can you ask your vet if Zoe can start Cyclosporine.
She doesn’t need aspirin because she’s taking Plavix, which is a blood thinner. That’s to stop the clots forming.
Make sure the broth has no onions in it but what you’re feeding is great. Too much red meat is a strain on her liver right now, and with the drugs, her liver will be working hard, so don’t worry about red meat. Chicken in some broth might be nice for her – again, never any onions.
The transfusion is there to give time for the drugs to work. So if Zoe’s blood drops down too much, then do the transfusion if you can.
I have heard of plasma treatments, but don’t know anybody that has done this, so can’t really help with this.
You’re vet sounds lovely. My boy Bingo was under a specialist, because my local vets didn’t really know what was going on. If you can see an Internal Specialist, that might be good. No offence to your vet but this disease needs to be treated quickly and hard. Sometimes a university veterinary hospital will have the expertise to help, but I’m a bit wary of universities because they like to teach and so sometimes I’ve heard of dogs with this disease where they’ve done a bit of everything because it helps to teach the vets. Good for the vets, but maybe not so good for the dog.
In fact, with all the right drugs, Zoe will probably look worse for a while. The treatment is hard on them, but they have to go through this.
It’s a really hard time right now being in isolation and yes the grief and fear that this disease creates is unlike anything else I’ve known. None of my friends could understand why I kept trying to get Bingo better. You can read Bingo’s story here:
https://www.secondchanceaihadogs.com/our-stories/bingo
I think Zoe’s drugs need to be sorted out and then hopefully she’ll start to get better.
Please look after yourself too. That’s very important.
My best,
Vally
Hi Vally,
saw vet today i could tell zoe was going down again, and was right,
so now her bloods are back down to 15. I have . decision ti make by tomorrow. go ahead on tuesday ( it’s thursday) and have a transfusion and spleen taken out , minimizing having to have 2 procedures. we feel it’s unlikely just the transfusion will do more than it has this time which is buy time …. so the spleen feels last line . it is the last they will do as well .
either that or prepare her for a good death .
if we do the surgery etc , and a week later her bloods are good , well she could have a good outcome , if not we go back to preparing for a good death.
only pronlem is I ALSO need a hospital procedure and they want to do it asap and means a week in hospital. so the timing is tricky , my best option I think is if I do it ( which I will im sure ) then a week later after her surgery wound is healing and we get her bloods , that’s the best time for me to go have my thing done , because that’s when she is most likely to bounce back. if after that she goes down , well then I’ll be with her. i lose a week with her , but i would anyway and this might save her … none of it is ideal and all of it is awful , but that is how it is.
also yes on my own and dealing with this and myself. I have to have ketamine infusions for a week in patient for pain and then surgery and so its bad for me as well.
and covid……. anyway , oit is what it is, i think the one thing it is incredibly hard for people to understand , its like well let the poor dog die , they don’t understand the nature of this and the unknowns no one does , not even the vet knows how it will go.
also , she looks fine , so it doesn’t look like she’s as ill as she is and on deaths door not till its right close , which she was a pvc 11.
otherwise she seems fine just tired,
so people don’t get it of course . and you and I know it takes us a while to try get your head around it all and that it is not like having cancer or a tumour or anything else really. it’s somehow its own horrible beast,
this is the worst pet being ill , maybe even human being ill experience . im devastated , tired , anxious and today i can barely cope with not just her but my own situation .
its awful
anyway , just sharing , i can’t see not giving her this last chance . its $2400 but i have it , i’ll be poor and have thousands I have to spend on my health as well. and prob soon wont have a job either
but , hey life’s short .
thanks samia
Samia, I’m really worried about the spleen removal. It’s major surgery and your girl is very weak right now.
Did you ask your vet about swapping the Imuran for Cyclosporine. Imuran can be stopping Zoe’s marrow making new red cells. The Cyclosporine targets the cells that are doing the damage. It’s a good drug. This is what turned it around for Bingo. Some people find that it takes a little bit of time to start to work, but with Bingo, it actually improved on his next blood test.
I’m not a vet, but I have lived this disease. Before going ahead with the spleen removal, please ask about swapping the Imuran for Cyclosporine.
My very best, Vally.